HLHS

Miles Lon Ogilvie ~ Our baby and hero

How do I start this post except to say the last two months have brought forth the most difficult of times, but also the most amazing insight into all the blessings in my life. Through all of it, we've had God, family, friends, and complete strangers to lean on and give us strength. 

Before Miles was born, I was so anxious about his arrival. A part of me wanted him to stay in there as he was safe and his heart was "working". The day came and it went as smooth as it possibly could. When I saw my baby boy for the first time, I was overcome with emotions and in awe of this life that had been given to us. 

We were able to hold him for the first time on the third day before his heart surgery. I was able to see him open his eyes for the first time and we just stared at each other. It was so hard to believe that anything was even wrong in that little body of his. That takes a toll on you to see your baby looking healthy as can be and then post surgery in the same day. It's tough even now to look back at pictures. I kept reminding myself he needed this in order to live and be with us at home. Every night, we took a picture of Miles with a chalkboard listing out all that took place that day. I'm so glad we did this. The truth is it gave me something to do when I couldn't do anything else. When I couldn't hold him or touch him, I could take a picture and it was healing in a way. We also believe in the power of sharing stories in your life to look back on or to help someone else get through a difficult time. I share stories through pictures and this is the beginning of Miles's story. He has gone through so much in such a short time, its hard to believe and he has more surgeries to come, but he is a fighter and forever our hero.  

"I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:14